Bad News
One day before Christmas, and while we approach the end of the treatment bad news arrived from the US... An expert from John Hopkins, sent his second medical opinion, indicating that "ALL children with DIPG will die within two years...". So simple... Not "Most of the children", not "usually", but a very hard to accept ALL. He suggested that we should take advantage of the "holiday" period that will last 3-5 months after initial treatment (as holiday period he describes the period without symptoms...), and we do things that will give joy to Dimitris, because after 3-5 months symptoms will return... Not maybe, not usually... Symptoms WILL return... Who is this guy??? Is he God??? How can he be so sure about the progress of the disease... ??? I hate him from the bottom of my existence... and I hope he is wrong... Worst Christmas EVER...
However, we still do not lose faith... No doctor is capable of making us stop looking for the miracle...