Blog

Cyberknife

05/06/2014 14:00

We decided to proceed with 4 sessions of Cyberknife.  We will give 20 extra Gy of radiation in an area that has already received 54 Gy... This dosage is to much even for an adult... Some doctors say that even if we manage to save Dimitris from cancer, effects of radiation in the future may be equally heavy... Some other doctors say that we only win 3-5 months of extra life... How pathetic can they be??? 

 

If we don't do anything the end is very near... So we go for it, and we hope for the miracle once more... We continue to believe that this fight will be won.

What's next?

11/06/2014 14:06

End of cyberknife, and now we wait... If everything goes well, we may go for some summer vacation... Will it be the last one??? This question is becoming a routine...

Summer Vacation

04/07/2014 14:08

Cyberknife probably managed to stop the development of the tumor, and probably shrunk it also, since Dimitris is in better shape... So we go for some summer vacation... Crete... The best hotel ever... But not the best vacation ever since the usual question is coming again and again...

My birthday

16/07/2014 10:11

My birthday today and we celebrate it at the hospital... We have changed our chemotherapy scheme and every two weeks we should stay for 6-8 hours in hospital for vain infusion.  Cyberknife along with the new drug gives us hope...

Aegina Island

26/07/2014 15:16

Weekend in a nice nearby island, but while everything looks good, my eye keeps starring Dimitris left foot... Something bothers me... It looks to me that something is different, something is worse... I DO NOT want to believe it...

Disneyland

18/08/2014 08:00

Going to Disneyland and Paris for a week... It was a hard decision to take... It looked as fulfiling Dimitris' last wish... It looked like accepting our destiny and deciding to give a last big joy to our kid... But we decided to do it and spend as much quality time with him as possible... Hoping always that we will go again to Disneyland with him in few years!

Back to Athens

25/08/2014 22:27

Back to Athens... Dimitris enjoyed less than expected the trip... Apparently his foot is getting worse since he was getting easily tired and didn't want to walk... We had to rent a special kids pushcart to move around... It was also so crowded with tourists and made things even worse... At least, he had some very good meals (always a gourmet guy) and did some extreme shopping, buying whatever he wanted... We cannot say no to him... He is getting so spoiled right now... But who cares??? When we manage to win his disease, we will manage to unspoil him easily! 

New school season

11/09/2014 08:30

New school season starts today and Dimitris is back at his school with all his friends waiting for him... There has been some excellent preparation from school management and everybody accepted him as normal!  He doesn't stay for the whole day, at least for the beginning, we will see how it goes... 

 

We bought together all his school supplies and this gave him great pleasure...

4th MRI

15/09/2014 14:00

New MRI today to see the results of June's Cyberknife.  No shrinkage... The tumor is similar in size with June... That explains current walking difficulties... But there is a bad development... There is small dot that implies a new tumor in the same pontine area... We couldn't shrink the big one, now probably we have a second one...

It looks like our miracle misses its way... But there is still time to find it.

 

Trip to Salonica

19/09/2014 12:32

When medicine cannot help, and you are desperate you have to examine all available solutions... All these months we have tried everything that could give us some hope... A friend told us about a "healer" who has done miracles with several patients in the past... He urges us to visit him in Salonica where he is located... What do we have to lose? 

The only thing we got out of this trip is false hope... It is amazing how naive you can be when you are desperate...

 

It proved to be our last trip with Dimitris... A trip to the city whose patron saint is Dimitrios...

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