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2nd MRI day

21/03/2014 13:40
MRI at a different hospital this time... Results? Totally confusing... The tumor appears some milimeters bigger... But no doctor can say that the disease progresses since it is a different MRI machine and some milimeters can be just a statistical error... But noone looks very...

Symptom???

15/03/2014 03:36
First time after almost three months that Dimitris has "strange" sleep... Noises, small cries, a lot of movemet... We had this kind of symptoms just before diagnosis... It is not possible that symptoms return so fast... Or is it???    Immediate meeting with doctors and we decide to go for...

Routine...

14/02/2014 12:14
After our MRI we have started again our chemotherapy protocol.  3 weeks on, 1 week free...  However, although Dimitris was always able to take his pills, during last days he shows some reluctancy... Taking a pill has become a ritual... It takes more than 15 minutes, and several attempts...

MRI day

29/01/2014 14:30
MRI day and we hope that we may have won... Waiting for the results looks like ages... When doctor comes out he talks with mixed emotions... Yes, we managed to shrink the tumor for more than 50%... But it is still there... Much smaller, but present... We don't know if it is still active or not,...

Back to school?

20/01/2014 09:30
Since Dimitris is in good shape, and his blood tests quite normal, we decided to try to send him back to school... Seeing again his friends could be helpful... It didn't prove to be a good idea... His extra kilos from cortisone and the few missing hair around ears caused many comments from his...

A small trip

10/01/2014 13:10
Going to Mytilini... God has to help us to win this fight, and on this island as I mentioned before,  locates the monastery of one of his best ambassadors...Taxiarchis... We look for the miracle and hoping for the best results in the upcoming MRI.  Excep the religious part, it is agood...

End of initial treatment

03/01/2014 13:00
Last treatment today... Dimitris is in very good shape... He walks much better, he sleeps without strange reactions... He got of course some weight from cortisone, and his sweet face is totally round... Hopefully he didn't lose his hair, only a very few around his ears from radiation... MRI is...

New Year...

01/01/2014 12:52
Usually this period is the best time of the year... Not this year... We try to act as normal as possible but it is so damn hard... A year is leaving with the worst memories, a new one is coming and the only thing we can do is continue to believe, hope and pray... continue to look for the...

Bad News

24/12/2013 07:55
One day before Christmas, and while we approach the end of the treatment bad news arrived from the US... An expert from John Hopkins, sent his second medical opinion, indicating that "ALL children with DIPG will die within two years...". So simple... Not "Most of the children", not "usually", but a...

Visit to Taxiarchis

17/12/2013 09:00
A friend of mine talked to me about a monastery in Mytilini island. In this monastery you can find a holy picture of Taxiarchis, the archangel of God. According to many people Taxiarchis is responsible for many miracles over the last decades...   I have never been a warm supporter of any...
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